{"id":53317,"date":"2025-07-07T22:06:57","date_gmt":"2025-07-07T19:06:57","guid":{"rendered":"https:\/\/arabmediaagency.com\/?p=53317"},"modified":"2025-07-07T22:13:40","modified_gmt":"2025-07-07T19:13:40","slug":"urgent-appeal-to-save-the-life-of-younes-a-child-with-duchenne-muscular-dystrophy","status":"publish","type":"post","link":"https:\/\/arabmediaagency.com\/?p=53317","title":{"rendered":"Urgent Appeal to Save the Life of Younes, a Child with Duchenne Muscular Dystrophy"},"content":{"rendered":"\n<p class=\"has-text-align-left\">Mercy and humanity are calling today..is anyone respond?1 <\/p>\n\n\n\n<p class=\"has-text-align-left\">Cairo \u2013 Mai Abdo<\/p>\n\n\n\n<p class=\"has-text-align-left\">The family of Younes Mostafa Khalil Shekhba, a three-year-old boy, is making an urgent appeal to the political leadership, the Minister of Health, the Prime Minister&#8217;s Office, and all relevant authorities to urgently intervene and save their son, who suffers from a rare and serious genetic condition known as Duchenne Muscular Dystrophy (DMD)<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" loading=\"lazy\" width=\"1024\" height=\"771\" src=\"http:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0054-1024x771.jpg\" alt=\"\" class=\"wp-image-53310\" srcset=\"https:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0054-1024x771.jpg 1024w, https:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0054-300x226.jpg 300w, https:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0054-768x578.jpg 768w, https:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0054-86x64.jpg 86w, https:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0054.jpg 1080w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<p class=\"has-text-align-left\"> This progressive disease gradually robs the child of his ability to move, then breathe, and ultimately threatens his life.A Journey of Pain that Began Early.<\/p>\n\n\n\n<p class=\"has-text-align-left\">The family&#8217;s painful journey began with a series of specialized tests, all of which confirmed the diagnosis these including<\/p>\n\n\n\n<p class=\"has-text-align-left\">MALPA genetic test conducted in Germany, which confirmed a deletion mutation from exon 46 to 48.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" loading=\"lazy\" width=\"576\" height=\"1024\" src=\"http:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0026-576x1024.jpg\" alt=\"\" class=\"wp-image-53312\" srcset=\"https:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0026-576x1024.jpg 576w, https:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0026-169x300.jpg 169w, https:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0026.jpg 720w\" sizes=\"(max-width: 576px) 100vw, 576px\" \/><\/figure>\n\n\n\n<p class=\"has-text-align-left\">Creatine Kinase (CK) test, which showed a significant elevation in enzyme levels.<\/p>\n\n\n\n<p class=\"has-text-align-left\">Electromyography (EMG) revealed noticeable impairment in muscular activity<\/p>\n\n\n\n<p class=\"has-text-align-left\"><\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" loading=\"lazy\" width=\"576\" height=\"1024\" src=\"http:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0027-576x1024.jpg\" alt=\"\" class=\"wp-image-53311\" srcset=\"https:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0027-576x1024.jpg 576w, https:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0027-169x300.jpg 169w, https:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0027.jpg 720w\" sizes=\"(max-width: 576px) 100vw, 576px\" \/><\/figure>\n\n\n\n<p class=\"has-text-align-left\">The diagnosis was further confirmed by Professor Dr. Maha Saad, a genetics expert at the National Research Center.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" loading=\"lazy\" width=\"576\" height=\"1024\" src=\"http:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0044-576x1024.jpg\" alt=\"\" class=\"wp-image-53313\" srcset=\"https:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0044-576x1024.jpg 576w, https:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0044-169x300.jpg 169w, https:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0044.jpg 720w\" sizes=\"(max-width: 576px) 100vw, 576px\" \/><\/figure>\n\n\n\n<p class=\"has-text-align-left\"> A muscular dystrophy medical file has already been opened for Younes under the health insurance system in Menoufia Governorate, registration number (440).<\/p>\n\n\n\n<p class=\"has-text-align-left\">Gene Therapy\u2026 The Only HopeYounes&#8217;s family is issuing a heartfelt plea to help provide access to gene therapy abroad, which currently represents the only available hope to slow down the progression of the disease and save his future. <\/p>\n\n\n\n<p class=\"has-text-align-left\">However, this treatment comes at an extremely high cost, with a single gene therapy injection priced at over 3 million US dollars \u2014 a cost far beyond the means of any ordinary family.<\/p>\n\n\n\n<p class=\"has-text-align-left\">The family emphasizes that time is not on Younes\u2019s side \u2014 each day of delay further weakens his muscles and increases the risk of irreversible complications.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Mercy and humanity are calling today..is anyone respond?1 Cairo \u2013 Mai Abdo The family of Younes Mostafa Khalil Shekhba, a three-year-old boy, is making an urgent appeal to the political leadership, the Minister of Health, the Prime Minister&#8217;s Office, and all relevant authorities to urgently intervene and save their son, who suffers from a rare [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":53314,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"spay_email":""},"categories":[29],"tags":[43,11212,45,44],"jetpack_featured_media_url":"https:\/\/arabmediaagency.com\/wp-content\/uploads\/2025\/07\/IMG-20250707-WA0056.jpg","_links":{"self":[{"href":"https:\/\/arabmediaagency.com\/index.php?rest_route=\/wp\/v2\/posts\/53317"}],"collection":[{"href":"https:\/\/arabmediaagency.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/arabmediaagency.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/arabmediaagency.com\/index.php?rest_route=\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/arabmediaagency.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=53317"}],"version-history":[{"count":0,"href":"https:\/\/arabmediaagency.com\/index.php?rest_route=\/wp\/v2\/posts\/53317\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/arabmediaagency.com\/index.php?rest_route=\/wp\/v2\/media\/53314"}],"wp:attachment":[{"href":"https:\/\/arabmediaagency.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=53317"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/arabmediaagency.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=53317"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/arabmediaagency.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=53317"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}